Believe it or not we are still waiting. We heard from our patient advocate this morning and she is dumbfounded. Nobody knows what the plan is. We still don't have a surgeon, but they still don't have plans to discharge him. It's been a long and depressing three days. Last night was probably the worst. Because Marc is prepped for surgery he has three IV lines, delivering everything from his nutrition to his blood thinners to two units of blood. This made it uncomfortable to sleep and every time he moved or got up the pump alarms would go off. Needless to say between the alarms going off constantly and the usual monitoring of the nurses, it wasn't a restful night. Given our fatigue and frustration levels we are struggling to keep positive. If it weren't so frustrating it would almost be funny....
We heard it rumored that the doctors are on rounds. We have yet to see or hear from anyone. Maybe soon.....We will keep you posted :) Keep praying!
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Time to get grumpy!
ReplyDeleteDemand to talk with the Chief of Oncology and the Hospital Head of Administration and bug the floor desk every 30 minutes if you haven't heard a progress report.
I have a call into my case administrator to see if she can help at all.
Sorry.
Julene
Jane, we have been out of town and I just read this. Being a "woman of many words" as Joe says, at this time I don't have any; except I hurt for you, Marc and the kids. I feel your pain in your blog and I all I can think of is God sees the whole picture. We love you, and we continue to pray for you. Love and hugs,
ReplyDeleteBetty and Joe